Powerful Changes on the Home Front

So, as many know already, my 6 year old has type 1 diabetes. So far, it has been injections by needle 5-6 times each and every day. But on the 9th of Sept. we started what they call a saline trial with an insulin pump. This monday the 16th, she went ‘live’ with it, now having real insulin in it and no injections necessary! Now it’s 1 poke every 2 days (not including finger stick tests, which will never go away unless the technology improves).

This has been huge around our house. Telephone calls, appointments, excitement, arguments… stress. It’s a huge life change that is probably 95% positive, but still stressful and a lot of work. Going on the pump changes so much that they say it’s almost like it was when first diagnosed. I’m now getting up 2 times through the night to obsessively test her. It’s not easy or simple, and it’s an extremely exhausting transition. Well worth it, though!!

 

I feel so lost and behind with everything. The yard is a mess. The house is, while not overtly trashed, far below par. I am personally just so tired. I feel stretched thin and wrung out.

 

I regret in part that this has interfered so dramatically with my writing. I know there are those of you waiting impatiently (yet conversely, patiently) for the next book. I want you to know that I hear you, I feel you. I haven’t forgotten you. I can’t regret doing what I must to care for my daughter, but I do regret the necessity to set other things aside in so doing.

But things are on the move again here. For the next couple of weeks, I can’t lie, it’s still going to be hard here. The first couple of weeks of being on the pump require constant monitoring of her BG levels. So she’ll still be my priority. But something of a reprieve is on its way. Hang in there with me a little longer!

 

Thank you!

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The Great Travail: Diabetes vrs. Writing

As some of you may know, my 6 year old daughter was diagnosed in Dec. 2012 with type 1 diabetes. I won’t go into all the differences between type 1 and type 2, as anyone interested enough can look it up. I’ll suffice it with this… my daughter can eat anything that anyone else can eat, she just requires a shot of insulin before she can eat it. In type 2, the person’s body doesn’t like insulin–it resists it, basically. In type 1, the body, simply put, just doesn’t make any.

So, there’s the super-extra-fast skinny on the differences…

On to the point. We are in the process of getting her onto an insulin pump. We are also in the process of changing from one endocrinologist to a different one. Both of these have been extremely stressful, and getting her insulin pump has been delayed until August, if not later. I’m hoping for a reprieve and that we’ll manage to get it earlier and faster. Here’s crossing my fingers.

That being said, everything else in life has gone on hold for quite a while thanks to these issues. Diabetes, at least in these early months, is all-consuming for the caretaker(s). At least, around our house it has been. It’s learning and figuring and researching and trying to learn this pump versus that pump. It’s reading about how to pretend you’re a pancreas.

Pretending to be a pancreas is kind of like pretending to be a state-of-the-art computer from 2206. I just as well try to be a rock star or pretend that I’m an astronaut. In other words, it’s just not possible–yet it still consumes so much time, energy, and effort.

In the meantime, we’ve finally gotten to the point where we’re trying to catch up with some things at home. I’m getting a new desk. Since I”m a mom, my desk is sort of the dumping ground for pictures (I made this just for you, Mommy!), for personal grooming supplies (do you have the toenail clippers? no… er, wait… uh, eww!), for my own stuff (I know it’s around here somewhere!), and for pretty much anything and everything else you can think of (or, hopefully not… some things I’d rather not think of).

Additionally, we’re finally getting that deep freezer that I’ve coveted for years. Then there’s the garden that needs weeding and planting. Not to mention that the cherry bushes out front are being choked out by dandelions (which is a problem, because I actually like dandelions). Oh, also, there’s the small matter of cleaning up the storage room to make room for the bloody stupid freezer that I was entirely certain I really really wanted until I saw that storage room and remembered we have to clean it before… wait, what was I talking about?

Oh yes, something about writing.

I’ll be back at it soon. Except that the school year is ending and naturally, we’re right in the middle of changing doctors (both endo and pediatrician, by the way), trying to get an insulin pump, trying to clean the back room, trying to weed the garden, and trying to get my desk cleaned to make room for the new one.

Tired yet? I know I am!

But, I haven’t forgotten writing and I’ll be back to the poor old abused grindstone soon, I promise!

No, seriously.

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